Our research into the disabled self-employed focused on their experiences in self-employment before concluding with a series of recommendations for government.
Despite the large number of disabled people in self-employment, relatively little is known about their experiences and views of this way of working. Given the high level of satisfaction among the wider self-employed population, there may be a tendency to assume disabled self-employed people are equally satisfied and are on an equal footing with the rest of the UK’s freelancers. As Making self-employment work for disabled people uncovers, satisfaction is high among disabled self-employed people. However, previous research shows the playing field may not be level for this group. In this section we look at previous evidence and outline what others have uncovered on this subject.
In recent years, efforts have been made to answer major questions about the experiences of disabled people in self-employment. One study found that disabled people were less likely than non-disabled people to cite positive reasons such as the desire for independence or exploiting a market opportunity as reasons for becoming self-employed.6 Their reasons included more so-called ‘push’ factors such as a lack of alternative opportunities.
Others argued that disabled people’s motivations and experiences of self-employment depend on whether their condition or impairment is work-limiting or not.7 For those with work-limiting conditions or impairments, one of the key factors that encourages them to become self-employed is the flexibility of work schedules and the ability to accommodate their conditions and impairments.8 The same study also recognises that self-employment offers disabled people the opportunity to accommodate their impairment or condition, suggesting that regular nine-to-five employment may make it difficult to work around their conditions.
The issue with much of the research is that while it offers a valuable insight into this self-employed group, much of it is now out of date and does not provide insights from disabled people themselves.
In 2016, an inquiry by the All Party Parliamentary Group on Disability, a parliamentary group that focuses on issues that matter specifically to disabled people, explored what disabled people and disability experts think about employment as a whole.9
During their inquiry, they heard evidence that suggested self-employment was positive for disabled people. Many of the witnesses echoed what the academic research has shown: that freelancing enables people to work around their conditions or impairments, while employment is slow to adapt. Witnesses said employment was inflexible and unsupportive in many ways, and believed that disabled people face attitudinal barriers in employment. Others commented that they were more productive as a result of being in self-employment.
The APPG’s report provides an invaluable initial insight into disabled people’s experiences. However, as its focus was on the issue of the disability employment gap, it left some questions about self-employment unanswered. Most notably, it did not answer certain questions about how disabled people view the welfare system, access to training opportunities, support getting started in freelancing, as well as many other issues.
Financial difficulties are tough on anyone, but a closer look at income data shows that, for disabled people, they can be even more difficult.
Previous research conducted by IPSE shows some of the greatest challenges people face in self-employment are related to their finances. When asked what concerns them most about self-employment, people mentioned irregularity of income (50%), not being able to work due to illness or injury (49%), not being financially prepared for retirement (46%) and not being paid on time by a client (39%).10
A previous study has shown that disabled self-employed people are paid less than both disabled employees and non-disabled self-employed people. According to the Papworth Trust, disabled self-employed people who work full-time earn 23 per cent less than non-disabled self-employed people, and a staggering 42 per cent less than disabled employees.11 Therefore, disabled self-employed people are likely to be more affected by the challenges mentioned above.
This could potentially be explained by the lower education levels among disabled people in general. For example, disabled adults are nearly three times more likely to have no formal qualifications as non-disabled adults.12
Training and qualifications have long been held as a key route to improving career outcomes and, by extension, living standards. The Social Market Foundation found that training and qualifications were especially important for low-paid self-employed people, as they allowed them to break through the trap of low pay.13
According to a recent Involvement and Participation Association (IPA) report, commissioned by IPSE, the relatively low level of formal training undertaken by the UK’s self-employed is likely to be because training is expensive and means losing valuable work hours.14 Around a third of the self-employed people (31%) said they did not want to spend time training when they could be earning instead, while 28 per cent said they did not have the time and 27 per cent said training cost too much.
The disabled self-employed are doubly disadvantaged because they face not only low pay, but also not being able to afford to pay for routes out of low pay, such as training and qualifications.
In the rest of this report, we will uncover more about this poorly understood group of the self-employed. Firstly, we offer a snapshot of disabled self-employed people through our analysis of the Labour Force Survey data. We then take a closer look at the experiences of disabled self-employed people through interviews with disabled people themselves, as well as comments from experts.15 And in the Recommendations Section we lay out our achievable agenda to enable disabled people to make a success of self-employment.
One of the leading academics regarding disability and self-employment, Professor Melanie Jones, described ‘push and pull factors’ that brought disabled people into self-employment. In other words, factors which compel disabled people into freelancing due to negative experiences in employment, and factors which draw disabled people in. A review of the testimony from disabled people and experts shows that this holds true, and although on balance disabled people’s experience of freelancing is positive, it is important to acknowledge the positive and less positive sides to this way of working.
Looking at Labour Force Survey (LFS) data on the main reasons for disabled people choosing self-employment, the most common reason is better work conditions or job satisfaction as outlined by over a fifth (21%) of all respondents.
Other disabled people chose self-employment because of the nature of their job or chosen career (19%) or to maintain or increase their income (9%), suggesting that the larger proportion of respondents did so because of pull rather than push factors.
Six per cent of disabled people chose self-employment because they could not find other employment, and a further six per cent did so because of redundancy. This finding is in line with the motivations of the wider self-employed population.
Over a fifth (22%) of the disabled self-employed respondents selected the ‘other’ category suggesting that the reasons for joining self-employment for disabled individuals might be far more diverse than the options presented in the survey and therefore we address this question in a greater detail in our qualitative findings below.
Disabled freelancers do face a set of challenges in self-employment. But, it is important to note that, whilst many of these problems will feel very real for those going through them, they can be overcome, and solutions are addressed in the Recommendations section. The remainder of the Challenges section outlines the issues that face disabled self-employed people, and find that in some cases, such as the issue of late payment, disabled and non-disabled freelancers share the same problems.
Late payment is the scourge of the UK’s self-employed, with the average freelancer spending 20 days a year chasing late payments.16 For 40 per cent of freelancers, this results in no payment being made at all.17 When these factors are coupled with the issue of fluctuating income it can have greater consequences on some disabled self-employed people.
Continuing training and development is important for all self-employed people to keep ahead of technological, professional and regulatory changes. This claim could be even more relevant for the disabled self-employed who are more likely than average to have no educational qualifications. But, too often disabled freelancers find they are priced out of training opportunities or are unaware of what’s on offer.
According to our LFS data analysis, there are large differences in the number of disabled self-employed and disabled employees reporting job-related training in the previous three-month period.18
Less than one in seven (13%) of the disabled self-employed reported undertaking job-related training in the last three months, compared to more than twice as many disabled employees (27%) who had done so.
This trend raises questions about whether the UK’s disabled self-employed engage in enough learning and training opportunities to support their skill development needs. It also poses questions over the potential impact on their career progression, income levels and accessing more or higher quality work opportunities.
As reflected earlier, some of the key areas disabled freelancers sought training include developing their sales and marketing skills, as well as training on tax and finance management and bookkeeping – the essentials of any successful business.
Many experts recognised the fact that disabled people in self-employment are more likely to be less confident in negotiating higher rates in pay than the wider self-employed.
According to them, in some cases this is associated with difficulty finding a client or a job, while in other cases disabled people are not aware of how much they can charge for a product or a service and end up undervaluing their work.
Experts suggested access to mentoring and networking opportunities, as well as good guidance on setting day rates as key for boosting income through improved self-confidence.
As with all businesses, disabled self-employed people may require financial assistance from time-to-time, or will need to divert some of their earnings for other things such as preparing for retirement. At times they can feel unsupported in this area, either by banks that don’t understand their needs or personal circumstances and pension providers whose products are inflexible, amongst other areas.
In any industry, support from trade unions like Community and bodies like IPSE, as well as through the government provide vital access which can help disabled people make a success of self-employment. We explore the available support options and highlight areas for improvement.
For many disabled people, the welfare system is an essential lifeline to support them through periods they are in or out of work, or when they need extra support to accommodate their condition or impairment and a range of government-provided benefits help to that end. There are a number of different benefits that currently exist:
All these benefits have been the subject of varying levels of criticisms over the past few years, however, much of the criticism revolves around the execution of them and not the principles behind the ideas.
ESA is a good example of a benefit that divides many. For disabled recipients, the benefit creates two separate groups:
• The Work-Related Activity Group (WRAG): For those that have a condition or impairment and are expected to be able to work within 12 months.19
• The Support Group: This is for people whose impairment or condition means they are unlikely to work in the future and there is no requirement for them to seek work.20
A key issue with ESA is not necessarily with the creation of these two groups, it is generally with, at times, the unfair placement of ESA recipients into the wrong group. The assessment process for ESA, the Work Capability Assessment (WCA), has been criticised for placing individuals unable to work into the WRAG group which has lead to views that the assessment is unfair. Feedback reveals that it does not feel as if the WCA was co-designed with disabled people and that it misunderstands certain conditions or impairments.21,22
Universal Credit has been the subject of heavy criticism since it has gradually been implemented. UC will eventually supersede a range of benefits, including ESA, and will mean many millions will migrate onto the benefit over time. The issues associated with UC affect disabled and non-disabled recipients in equal measure, though given salaries for disabled self-employed people have been found to be lower than for non-disabled self-employed, it could be argued that it penalises disabled recipients more.23 These relate to two core issues:
These issues in turn can exacerbate the already present issue of fluctuating income that some self-employed people must manage.24
Personal Independence Payments (PIP) are a welcomed benefit that supports disabled people with their extra costs. Many criticisms have centred around a gruelling application process that applicants have to go through, in addition to the Work Capability Assessment they must go through to apply for in-work benefits. In March 2019, the Secretary of State for Work and Pensions announced a trial to combine PIP and WCA processes by 2021, and we cautiously applaud the government in their efforts to make this a less stressful and cumbersome process for disabled people.25, 26
For some, Access to Work (ATW) is thought of as one of the best kept secrets in welfare support.27, 28 In addition to the benefits mentioned earlier, ATW offers disabled people access to job coaching and training support which are welcome and should help with skills gaps amongst disabled freelancers. Keith Bates of Mutually Inclusive suggested there is potential for ATW to be extended to cover personal assistant payments for those who need extra support with accounting and invoicing, and should place less responsibility on the individual to find the support structures.
Much of the criticism, however, refers to the relatively low take-up rates for the benefit which indicates the relevant authorities are not making enough people aware of ATW, such as within the Job Centre Plus system. The latest statistics provided by the Department for Work and Pensions indicate only just over 33,000 people are in receipt of the benefit, and a strikingly low proportion of them identify as having a mental health condition (less than 5%).29
ATW is not without its supporters, however. Seema Flower of the Blind Ambition charity argued ATW is “the best thing the government does to support disabled people in work.”
The New Enterprise Allowance (NEA) is a benefit which disabled people are eligible for, to assist them with setting themselves up as a business. They can receive an additional £1,274 over 26 weeks on top of any benefits they receive and the support of a local business mentor. Experts we have consulted argued the NEA is in theory a good means of supporting disabled people to get the support they need when setting up as self-employed, however in practice there are some limitations, namely:
The NEA is not widely publicised: Despite the NEA being a useful means of support for disabled people starting out in self-employment, the relatively low take-up overall would suggest it is not being widely publicised enough. Just over 120,500 businesses have been set up through the scheme since 2011, and only one in four of those individuals running said businesses self-declare as disabled.31
Job Centre Plus (JCP) are a network of offices which individuals can go to apply for a range of benefits and get support to find work. In interviews with a range of experts, many told us that in the wake of JCPs withdrawing Disability Employment Advisers, the centres now lack the depth of in-house expertise around disability.
The knock-on effect means many of the Work Coaches who are responsible for dealing with all JCP customers do not have sufficient knowledge of the needs of disabled customers and this can lead to poor outcomes at the assessment process and beyond. Further evidence from the interviews IPSE and Community conducted suggests there is a lack of awareness and understanding around self-employment as an option. Given JCP’s are an essential point of contact for disabled people to get the support they need to sustain their self-employed careers, it is vital this is reconciled.
Organisations such as trade associations like IPSE, trade unions including Community, and the wide variety of charities that meet the various needs of disabled people are just as important in enabling this group to have a positive experience of freelancing.
According to interviews with disabled people in self-employment, there is variable access to support from membership organisations and charities.
Those who did access such services generally found them helpful, especially in relation to gaining understanding of advice on transitioning into self-employment.
The majority of the experts interviewed also felt there is a real support gap, and a growing space for charities and commercial organisations to fill in this gap in terms of providing specialised advice and support, as well as products and services.
Disabled people are a vital and growing section of the self-employed community. In fact, their numbers have risen by 30 per cent in the last five years alone. They now make up 14 per cent of the total self-employed workforce, and this extraordinary growth shows no signs of slowing.
The disabled self-employed are part of an already diverse and thriving sector, and their varied perspectives and lived experiences do much to enrich the professions they work in. In return, while many of the disabled people we spoke to said employment had done little to support them, self-employment had allowed them to work more flexibly around their conditions and impairments.
When IPSE and Community set out to answer our key question, ‘is self-employment a positive choice for disabled people?’, we were encouraged to find the answer was, for the most part, ‘yes’. We found many of the factors that pull disabled people into self-employment – flexibility, greater control over their work and who they work for – are the same as those that pull non-disabled people into it. The key area where disabled and non-disabled people diverged was push factors. Many see employment as inflexible for disabled people, who have to manage physical or mental health conditions and impairments. Self-employment, however, offers them an opportunity to work around these.
It is important to recognise, however, that despite the overwhelmingly positive message from disabled people about self-employment, for some there are very real challenges that deserve our attention and call for solutions.
For people who receive welfare benefits, there is a strong feeling that at times the system works against them. Where this is the case, it crucial that the Department for Work and Pensions works to resolve this.
Just like their non-disabled counterparts, disabled people are also not immune from the scourge of late payment, and we urge the Small Business Commissioner and the Department for Business, Energy and Industrial Strategy to tackle this by fining the worst offenders.
When disabled people need support getting themselves set up or adapting to new regulations or innovations in their sector, organisations like IPSE and Community will also do our best to help them make a success of self-employment.
The WCA has been described as a difficult process for many of the disabled people who have to go through the process in order to obtain welfare support. Evidence on this area suggests that some assessments result in wrongful decisions because of the way the WCA is structured. We welcome the government’s commitment to reforming the WCA, and we believe a revised WCA that considers disabled people with a variety of physical and mental health conditions and impairments will go some way to resolving this issue.
Thousands of disabled people will be transitioned from legacy benefits, such as ESA, onto the newer Universal Credit. Concerns have been raised that this will cause distress for some, by having to go through the assessment process again, and for others may result in the loss of benefits due to individuals being unaware of application deadlines or even the requirement to reapply at all. To ensure all existing claimants are protected we call on the government to continue existing benefits until individuals are migrated onto UC.
For self-employed people, UC can do more harm than good. It does not recognise that businesses, such as those set up by self-employed people, more often than not take over a year to get off the ground. This is the nature of starting a business. We believe UC needs to reflect this reality.
An additional element of UC requiring reform is the Minimum Income Floor. For self-employed people, the MIF can exacerbate fluctuating incomes, which some self-employed people are exposed to. Reforming the MIF will smooth out this punishing element of the benefit.
PIP is a lifeline for many disabled people, but concerns have been raised around the transparency of the assessment process, and whether assessors have an adequate enough understanding of various impairments or conditions to be able to make a correct assessment about someone. In March 2019, the Secretary of State for Work and Pensions announced trials to bring together PIP and other benefit assessments to reduce the burden on disabled people. Until this is the case across the country, we encourage a copy of the assessment to be provided to all claimants as standard practice, and individual assessors should be matched to the claimants in terms of expertise and experience, and more support should be provided throughout the application process.
Access to Work is one of the best kept secrets in welfare support. It allows disabled people the support they need to get back into or stay in work by offering financial support for adaptations or transport, as well as mental health support. However, given the relatively low take-up of ATW, not enough people are benefitting from it. Increased numbers of people using ATW could improve the retention of disabled people staying in work by giving them the support they need.
One of ATW’s core functions is to provide support for disabled people dealing with physical and mental health conditions and impairments. However, GPs are not currently able to refer to this service. It is also noted that less than five per cent of those using ATW identify as having a mental health condition. Given this low number, it would suggest that in addition to few people knowing about ATW, the pathways onto ATW are not being offered by those in the know. This is a missed opportunity for many who require this support. Given GP’s are a first port of call for many disabled people, it would be wise for them to offer patients referrals onto ATW to ensure individuals are being given the support they need.
The NEA is seen as a great source of support for people starting out their own business, by linking new business owners with established ones and offering some additional financial support. However, mentoring and benefits only last for 26 weeks, which for many is too short.
Given the low numbers of people taking up the NEA, and the evidence we have collected that many newly self-employed people would benefit from the support of a mentor whilst establishing themselves, we feel there is a gap in awareness of the NEA. It is incumbent on the government to raise awareness of this benefit to ensure more can make a success of their business.
It is often felt by disabled people and experts that Work Coaches have an insufficient understanding of disability or freelancing. This can result in poor support from Work Coaches and, on occasion, poor decisions during the assessment process for benefits. A heightened awareness of these areas through robust training should result in better outcomes for disabled Job Centre Plus customers.
It is common for freelancers to be paid late, and in some cases, not at all. In work IPSE did with the Involvement and Participation Association (IPA), we found self-employed people had spent an average of 20 days a year chasing late payments, and a staggering 43 per cent had gone unpaid at some point in their career.32, 33 The government established the Office of the Small Business Commissioner in 2016 to tackle this issue, but to date has not been successful in creating a shift in poor payment culture.
Previous research has shown that co-working spaces can play a significant part in combating isolation and loneliness. This can also lead to increased co-operation among self-employed people and encourage the sharing of ideas and resources.
The government should promote co-working opportunities and explore ways to incentivise the establishment of new co-working spaces. For example, the business rate relief that already exists for small businesses should be extended to workhubs to ensure freelancers are also effectively incentivised to develop and grow their business.
Mentoring can be a helpful way of ensuring those starting out in self-employment are able to get the essentials right from day one, such as accounting, and other soft skills like networking and promoting their business. Too often, disabled people reported they struggle with this and experts suggested a gap exists for mentoring support.
While engaging with third sector experts we found amongst some interviewees, there was a lack of institutional awareness around self-employment. In some instances, this means that they are not able to proactively provide support to disabled people entering, or who are currently in, self-employment should they need it. There is then a gap to fill to ensure disabled customers of charities who need support relating to self-employment can be properly catered for, in order to make a success of their self-employment. This should include practical advice on setting up as self-employed and how to use the welfare system as a self-employed person.
Trade associations and trade unions are an invaluable source of support and advice for self-employed people. After researching this report, we reflected on the new evidence and found there is more that we can do to support the disabled self-employed. The journey we have taken to identify their needs has helped us to begin the process of working out how we can best support them. Over the course of this year, we will develop plans to make sure the disabled self-employed feel they are supported by us to make the most of self-employment, and we hope equivalent organisations will follow suit.
Many self-employed people, disabled or non-disabled, opt to not save for their later lives. In a study IPSE undertook, 69 per cent of self-employed people said they do not have a pension. They told us this was not for lack of wanting to save, but primarily because of a perception that pension offerings are inflexible and do not meet their needs, particularly for those with lower earnings, who are unable to make regular payments. In addition to this, research by Community showed 55 per cent of self-employed members did not pay into a pension and did not believe that their pension will provide an income they can live on during retirement (65%). Furthermore, the majority of Community members suggested they do not pay into a pension because they can’t afford to. This has demonstrated there is a niche for a more flexible pension option that meets the needs of this group. The ‘sidecar’ is this solution as it provides two savings pots, one for a rainy day, to draw upon penalty free in case of an emergency, and a longer-term savings pot for retirement.
Evidence from experts we consulted strongly suggests banks and other lenders do not understand self-employment or disability issues as well as they could. Greater training for their staff on these areas should lead to better outcomes for disabled freelancers in accessing finance for their work.
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